A good anecdotal lead. Carolina Solis is a medical student who did research on parasitic infections caused by contaminated well water in rural Nicaragua.
Like many researchers, she plans to submit her findings for publication in a medical journal. What she discovered could benefit not just Nicaraguan communities but those anywhere that face similar problems. When she submits her paper, though, she says the doctors she worked with back in San Juan del Sur will probably never get a chance to read it.
“They were telling me their problems accessing these [journals]. It can be difficult for them to keep up with all the changes in medicine.”
Washington recently got involved. Squirreled away in the massive $410 billion spending package the president signed into law last month is an open access provision. It makes permanent a previous requirement that says the public should have access to taxpayer-funded research free of charge in an online archive called PubMed Central. Such funding comes largely from the National Institutes of Health, which doles out more than $29 billion in research grants per year. That money eventually turns into about 60,000 articles owned and published by various journals.
But Democrats are divided on the issue. In February, Rep. John Conyers, D-Mich., submitted a bill that would reverse open access. HR 801, the Fair Copyright in Research Works Act, would prohibit government agencies from automatically making that research free. Conyers argues such a policy would buck long-standing federal copyright law. Additionally, Conyers argues, journals use their subscription fees to fund peer review in which experts are solicited to weigh in on articles before they’re published. Though peer reviewers aren’t usually identified or paid, it still takes money to manage the process, which Conyers calls “critical.”
And cultural/generational change:
The pay-to-play model doesn’t jive with a generation of soon-to-be docs who “grew up Google,” with information no farther than a search button away. It’s a generation that never got lost in library stacks looking for an encyclopedia, or had to pay a penny for newspaper content. So it doesn’t see why something as important as medical research should be locked behind the paywalls of private journals.
Copyright issues are nothing new to a generation that watched the recording industry deal its beloved original music sharing service, Napster, a painful death in 2001. Last October, it watched Google settle a class-action lawsuit brought on by book publishers upset over its Book Search engine, which makes entire texts searchable. And just last week, a Swedish court sentenced four founders of the the Pirate Bay Web site to a year in prison over making copyrighted files available for illegal file sharing. And now the long-familiar copyright war is spilling over into medicine.
There’s even WikiDoc
And, the article doesn’t mention this, but I’ll contend there’s a role for journalism to play. Here’s a modest proposal: allow medical researchers to republish key findings of the research in newspapers, magazines, something with a different revenue structure, and then make it accessible to everyone. Not perfect, but a programmatic effort would do some good.
Speaking of which — what are the new big ideas on the health/medicine beat? This is such a huge issue — it feels like it should have its own section in the paper every day.